We came across this touching story in Donna Thomson’s blog, “The Caregivers’ Living Room,” about a special connection with her father after he became nonverbal after .
For us, this had special resonance:
“I believe that our loved ones hear us, even when they cannot respond. There is something very fundamental about love and loving words that can be experienced by everyone, no matter how disabling their conditions might be.”
Please take the time to read her story. If you’re open, we’d love to hear your stories, too.
Our family was at the cottage recently when we got news of an old friend who had died young of a heart attack. That got us talking about memories of infirmity and serious illness. I began to recall my Dad – he was only 52 when he suffered his first stroke. It was the result of high blood pressure, high cholesterol, family history and smoking. My Dad would go on to suffer two more catastrophic strokes, including the last one which killed him.
But, before he died, my Dad was non-speaking for two years. During that time, he could walk, but mostly used a manual wheelchair to get around our house. He was depressed and frustrated that he could not speak. Most of all, he despised being dependent – this was a decorated WW11 soldier who had been an elite ice hockey player and a successful businessman. Nothing in his upbringing gave him the tools to deal with being completely dependent on others to complete simple activities of daily living.
I remember once when there was a snowstorm, my sister was planning to return to university after Christmas holidays. She was chatting about plans to drive with a friend the next day when my Dad gestured emphatically for a pad and paper. Always a talented artist, he drew a train. ”Yeah! Yeah!” he said, pointing to the image. My sister booked a train ticket and Dad sat back, satisfied he had acted to protect his daughter from a possible car crash due to terrible weather conditions.
Just before he died, Dad was in a coma. I remember sitting with him and talking. I talked and talked about my life, my hopes and my dreams. I don’t know if he registered all my words, but I remember being convinced at the time that he felt the love and yearning in my words. Years later, sitting beside my mother in law just days before she passed away, I did the same thing. I talked.
I believe that our loved ones hear us, even when they cannot respond. There is something very fundamental about love and loving words that can be experienced by everyone, no matter how disabling their conditions might be.
This morning, a story in the Guardian newspaper tells the extraordinary story of man who, after suffering a catastrophic stroke followed by ‘locked in’ syndrome, suddenly woke up and recovered. There is hope in this story and there is evidence that it’s worthwhile talking to our relatives who cannot answer.